I’ve got a condition called Ehlers- Danlos Syndrome.. It effects my joint and I have a dilated aorta on my heart. its only dilated by 1mm though so barely anything and I have checks annually. I have two friends, one also a sufferer of EDS who had her surgery no problem and another friend with a dilated aorta 4.5! mine is only. 3.1! it wasn’t een that clea in my first scan so I had to have another, so it is reall only tiny.
SOME people with ehlers danlos syndrome have a hard time healing but that doesn’t apply to me, I’m perfectly fit and healthy other wise. so there should be no reason for me to not have surgery should there? my gp and cardiologist aren’t worried about my dilated aorta, and my EDS just makes me hypermobile and I get pains in my joints
so so nervous, wanted this for so long but now I’m panicking!