Goodbye right breast :-( Started by: Claudine

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  • Claudine 196
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    So im not shocked, been insisting since day 3 post op there was a problem, it’s gradualy gotten worse but im feeling quite relieved today, i know my body, i know what pain is to be expected and what is not, 7 months of uncertainty has taken it’s toll so at least i should get some sort of explanation now surely???

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    Stacey 496
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    Something’s definitely going on Hun have u spoken to your sugoen again ? It’s not right your being left like this for soo long with no real answers other than what you have been researching your self xxx

    Claudine 196
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    I saw another MYA surgeon 2 month ago for a second opinion (not a second opinion on what was wrong but to see if he also felt overs were not an option for me, my surgeon suggested i did this, and the other surgeon confirmed he thought that placement could give me problems)
    He reccomended i did an exercise to relax my muscle and took painkillers daily for a couple of months to try and get on top of the pain but they made no difference and after a week of the exercise i noticed the implant started to shrink and ride back up my chest so i stopped doing it as my window shadow got worse, im supposed to be seeing my surgeon again next week but ive had to cancel as little one has an ADOS assesment the same day, ive seen him 3 times now though and not been told anything other than my gap can’t be changed but my problem wasn’t about the gap i had and should have kept it was about it widening by the week, and obviously all the other issues you allready know about, i took a pic a couple of weeks ago cause i could see it was getting worse but didn’t think it would go that far round, this was about 2 weeks ago, and the 2nd pic is from last month xxx

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    Claudine 196
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    Meant window shading not shadow x

    Saffc 6
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    Does it feel hard?? That looks like capsular contracture. The surgeon should do the surgery again for u, I think it’s covered xxx

    Chloe 122
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    +1

    I’d have to agree it looks like capsular contracture….. surely they can’t continue to leave you like this have you put in a complaint if you haven’t I would in writing and go from there, they need to fix this for you and not keep dragging their feet about it xx

    Mae 79
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    Yeah I was gunna say from what I’ve read on cc, it looks like it could be an option???
    So sorry that your having problems xx

    Stacey 496
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    As soon as you can make it Hun go back and see them demand some answers and I’ve also got to say I agree with the girls I’d say you have cc witch would also explain the pain you have been getting from my own research cc doesn’t have to always been hard to start with can go years befor it gets hard I really feel for you Hun esp with having a lot on with your home life aswell xx

    Stacey 496
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    Also u say when they xercising your implant got smaller and ride back up would also explain cc as your muscle would contract the capsular ask your sugoen on maybe a tad smaller implant over the muscle would that not be an option try get as diff resolutions as poss befor having to have them taken out completely xx

    Anonymous
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    I understand that only your original surgeon can perform the reop due to insurance reasons (ie. Their work is insured so if there’s an issue only they can rectify it) I know u have already seen another surgeon for placement advice but I would reccomend if u can to see Dr Linda Fiumara, I think she only works from London branches not sure but defo worth a try. She was my surgeon and she has done a lot of work on women with low breast tissue / chest wall and reconstructive work issues too. She has her own website also.

    This will get resolved Claudine xxx

    kelly 58
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    Claudine, we have all just been discussing this in our What’s app group, we all reallly feel for you, ( there’s over 24 of us) this is making us all shocked and worried now – this is bad service- you should of been offered this to be corrected straight away, Its very clear that something is not right.

    Claudine 196
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    Thankyou so much for your reply’s everybody xxx

    @kellyhalse
    ·  Thankyou for your message, it’s very important that you all know that i allready have an agreement to a revision (obviously that is not set in stone until it has been approved by head office but my surgeon and original PC have sanctioned it)
    The main problem is moving forwards, iv’e not been given any kind of diagnosis of what has caused my problems but was asked if would like them removed then asked if i had any suggestions of what could be done differently, i was quite taken back by that. Ive spent months researching, ive not once passed any blame or even near hinted at surgical error as i truly felt/feel that this is a muscle problem, ive remained respectful and patient as i don’t feel that revision should be performed until the 12 month mark in a case like this as there are so many changes each month, also my pain is low level it would be more neglectful to put somebody through a revision and second recovery if it wasn’t fully warranted.
    All my research and surgeon feedback from realself is pinpointing the same issues, obviously im not being examined by them and there relying on images and a 360° video so i should not be treating there explanations and suggestions as gospel but at the minute they are the only people giving me them.
    So unfortunate i can’t have overs as staying under could lead to a 3rd revision, i dont think it is CC as the problem was there right from the off and 2 surgeons have examined me now and not considered it, my breasts in my opinion do feel firmer than i thought they would but the right is no firmer than the left, also i have a puffy nipple and what feels like my own tissue bulging out just under it, i have a dent when i lean forwards and push them together as if the implant has displaced and the rippling is now severe all the way round except at rhe bottom so i think it makes more sense it’s the muscle thats making it displace lateraly xxx

    Claudine 196
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    Hi @saffc30 · 
    To be honest it does feel hard but they both do, they were very hard for a long time i was 5 months post op before they started to soften enough to push them together, ive not felt many implants so it’s hard to judge what’s normal, i met up with a friend 2 weeks ago who is 1.5 years post op and mine are so much harder than hers i was really suprised but hers genuinely feel like breast tissue but then hers are overs and silicone so that’s going to make a difference, i would be really shocked if it was CC it’s the one thing ive discounted from the beginning xxx

    Claudine 196
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    @littlec87 ·
    Hi Chloe, not ive not mildly considered putting a complaint in yet im just hoping on my next appointment he can offer me an explanation of what has happened and how we might be able to correct it instead of focusing on my dissapointment with the gap, i had a pre-op gap, i was told the gap was not a large gap but more because i had small breasts so i expected it to stay the same, i was realy happy with how it had closed at 6 weeks but after that it kept getting wider by the week, it’s difficult because i still think my surgeon is brilliant ive been on this forum a long time now and his work is clearly changing girls lives for the better, his re-ops (and ive not seen many) have been for CC from what i have seen so i still have alot of admiration for his work, things can go wrong and unfortunately they have for me i just think the whole experience could have been made alot kinder by simply giving me some answers, possible potential causes and a plan to move forwards, if id’e had that it would have been less emotionaly draining, the last thing in the world i would want at this stage would be to head back into theatre with somebody i had raised an official complaint against, that would be horrendous for both of us, here’s a pic of how it’s widened xxx

    Claudine 196
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    Having trouble uploading, maybe the technical problems there having, will try again, top pic is 6 weeks bottom is 7 month x

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    Claudine 196
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    @mae14 · 

    Thanks for your kind words Mae xxx

    Anonymous
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    I personally feel it’s a severe case of capsular contracture obviously I’m not a doctor but the images and discomfort u have been going through just lead it to tht point. I found this page which I copied and pasted below plus diagrams and grades of varying cc. Although the surgeon hasn’t given u a reason as yet and hasn’t mentioned it doesn’t mean they’ve discounted it.
    I hope ur revision date is given soon as its been quite a journey emotionally for u.

    There is no harm in lodging a complaint against ur surgeon bur equally it may slow down ur revision op as it maybe seen as a grievance.

    http://www.drleber.com/gallery/breast/breast-revision-surgery/capsular-contracture/

    Anonymous
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    Here’s a before and after capsular contracture

    Claudine 196
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    Hi Fran, thanks for the link, ive read up on CC a few times but something just kept pulling me away from it, i thought if there was even a remote chance of it being that i would have been informed it was a possibility so i discounted it, ive looked at tons of images that didn’t seem like a good comparison in the first few months but now the bigger one (and it was alot bigger imo) has started to shrink and rise up the chest i guess it is a possibility, also that little diagram you have shared has freaked me as that is exactly where my pain is onthe inner part of the right breast in the clevage, it never made any sense to me either that the smaller breast is not rippled, also it’s very square bottomed and flat fronted, exactly like some of the images in the link you shared (ill post one i took at 5 months) don’t have a recent one unfortunately but it is worse now, ive not actualy ever seen a side view image of CC it’s allways been full frontal one’s ive looked at, thanks so much for your help xxxxx
    In a way i would feel better if it was that because it would mean a straight forward removal and replacement without all the other worries coming into it!
    Sorry i missed you out in my reply’s Stacey! you were next! Ha ha but i had to reply to Fran when i saw her last reply xxx

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    Claudine 196
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    I’ll try and take a fresh one tomorrow, nothing more difficult than a right handed woman trying to take a good picture of the outside of her right breast in fake light at night :-))

    Stacey 496
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    It’s fine Hun I totally agree with fran in what she is saying anyways Hun also I know u have said u have had the pain from the beginning and altho very very rare cc can accually start from 6/7 weeks post op Hun I really do hope u get the answers you need very soon and hopefully you can have revised sugury soon xxx

    Anonymous
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    Your welcome hun I was surprised also about there not being many side views of cc in general online but I reckon they just focus on the front as it the more obvious place to look. I love looking at diagrams as they can be a bit more insightful. I do feel that cc isn’t something spoken about as much as it could be and it obviously effects women differently as u have seen in the link of gallery images. I felt it was important for everyone to see it does take on different forms.

    Sometimes I feel they (medical profession) don’t want to say much as some people take information and run with it positively or negatively with a dash of anxiety which can make it worse. Therefore this maybe why they have kept a lid on the various possibilities as to where u are today.

    What u have gone through despite being terrible has been so thoughtful for u to document and share to bring awareness to others. The best thing u can do is be positive mentally as this will support u with ur healing process. As u mentioned before the best case would be cc as it would be pretty straight forward to rectify. What u have gone through has weighed massively on ur emotions and u really are very strong.

    Thoughts become things… so start to vision ur boobs as they were initially intended when u went for ur first consultation. Disregard any negative emotions as they won’t help ur next stage which is revision.

    Fxx

    Claudine 196
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    @staceymlx · 
    Thanks so much Stacey, i was told it would be March and was quite happy to wait the year out as i know there are valid reasons for waiting that long but if it’s possible it is CC im a tad worried to be honest, i do need to go back as soon as i can, it’s not easy getting into the clinic though and another complication is during little mans assesments i need to move out of our house for 6 days 🙁
    We had a flood a couple of months ago and the entire kitchen and floor needs to be ripped out and replaced, have to move into a hotel! Can’t believe it’s fell on the same week, i have a private hospital on my doorstep literaly a 5 min walk so i might just pay the consultation fee to walk in there and get a check over for CC for simplicity, thanks again xxx

    Claudine 196
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    Aww Fran what a lovely message! i was near bubbling when i read it xxx
    Ive actualy tried to post on here as little as possible the last few months actualy, i made quite a few posts in the beginning and felt it was justified and also i agree it’s good for others to know the risks, they are minimal but still there.
    Im allways on the forum but stay under the radar most days (it’s funny but ive noticed the same trend now with myself and a couple of others who have had genuine problems and wonder if there frame of mind has been the same as mine?)
    We seem to have posted alot in the first couple of months then gone quiet and then gone on to have the odd monthly burst out post, for me it’s been trying to keep a happy medium of telling people the truth but then not wanting anyone to fixate on a bad picture, as much as i want people to know these problems exist so they can be vigilant i also am very aware there are fresh exited eyes (often very young) joining the forum everyday, it would kill me to think that somebody spent a portion of their life hating their body like i did and finaly plucked up the courage to change chat and came on here saw my post and backed down from the idea of a BA out of fear and just continued to go through life with limited confidence and femininity 🙁
    When i do post now it’s generaly because it’s just got too much for me to handle that day on top of other life issues, anyway ive been looking back through older pics and have to say my recovery was soooo bad it knocked me for six, the pain of my BA far outweighed some excruciating painful experiences and that never made alot of sense, my surgeon at the time did say it was unusual for me to have been in such pain for so long given my previous medical issues, i was concerned about the recovery because of little mans special needs and my family joked i probably wouldn’t even feel it given what id’e just been through so that’s ringing a bell for me now (i saw my gynea obs consultant last month in Asda ha ha! He was horrified when i told him the pain level from the BA in comparison to my time in his care) im wondering if i maybe had a hematoma and that’s started a CC?
    In my day 5 pic you can really see how swollen my right one is but that severe pain was there the minute i woke from the GA and nothing i took shifted it, it was week 4 before my pain really died down, you can see right through the 7 month the right was allways much bigger so for it to suddenly be smaller should tell them something, also i can’t wear a structured bra at all now not even for an hour but it’s because it pulls round so far, my crop top rides round 5 mins after i put it on but it’s not seperating them with having no cups but still uncomfortable, will add some pics.
    Would like to make a post about CC now to get feedback from others who have had re-ops for it but you allways worry it will be starting a new panic surge for girls who have their surgery in the near future xxx

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    Claudine 196
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    I know my right was bigger pre op (if there going to revise i hope there not going to want to put the same CCs in each breast this time) but the pic on it’s own shows a huge difference maybe it wasn’t just swelling, my nipples are still very painful too i wonder if that’s connected or just normal for some, can see in my crop top how much it’s pulling so now wonder i can’t get a bra on them, middle pic is how it’s sitting now and the dent when i push them together, last pic is how far my scars have moved xxx

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    Anonymous
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    Ur welcome hun and I totally understand about not wanting to scare others but it is important to air how u feel. I feel that we are like a network of supporters on myaspace and I think most of us would go insane without it.

    I didn’t realise u had so much going on at home also! U really are a super woman! The scar movement definitely making me think cc. The nipple issue well…they say it takes upto three months for pain to subside. As the implant is pushing against it and adding intense pressure forcing the nipple to stay erect and or loose sensation. Mine were very sensitive and erect for three months but I also had a mini uplift. I’m thinking that if the implant hardened so early on after surgery for u then surely this hardiness would make a definite impact on the nipples also. As the pain would be in tht area and has been ongoing also I take it? The fact that ur crop tops won’t sit flush/straight also determines that there isn’t a weight to hold them down in. The implant has risen up of which we know visually but it’s a considerable amount if it cannot hold down a bit of cotton /lycra. Its great u have the pain management under control or at least able to monitor it successfully.

    I’m just putting bits and pieces together really plus I’ve been watching endless episodes of botched. I’m no doctor (I’m a DT teacher who loves problem solving) but I do reckon there is a a link.

    I hope ur sons medical appointments go well and ur house is sorted without too much stress. It’s defo a trying time but it will defo be resolved ur already enroute fxx

    Stacey 496
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    +1

    Don’t be frighten to post your experience on here Hun I think it’s important that people see the other side of having a ba as things can and do go wrong your experience on this could possible help someone else at some point and you can also get some support of us woman for your self your a superwoman with everything u have going on if the privert one is a better option for u to go to st the min go to that pay to get checked then you’ve could go to your sugoen and tell him what been found xxx

    Chloe 122
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    Hi Claudine sorry I didn’t see ur reply till now, I’ve not read all the comments but I wasn’t meaning complain against the surgeon as you say this can happen to anyone and is prob not the surgeons fault as such I meant a complaint to mya that you have not been seen as a priority, with your pc and anyone else that you see with mya you should of had contact with them a lot more than you have with what was going on why and what they were going to do about it…. it just seems to me you have been left for far to long like this and your pc should have been fitting you in with the surgeon sooner and speaking about your case as to what messages she can pass onto you, we are aware how busy surgeons are which is why I’m guessing at mya you have a pc (I didn’t have this I had a nurse and my surgeon at all my consultations before n after my op and I had my nurse change my dressings and surgeon come in and check them) …… even if they were contacting you weekly/fortnightly to check up on you show they do care what has happened and that they will get u answers instead of just leaving you xx

    Claudine 196
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    Yes i agree with you Chloe, ive actualy not seen my PC since my initial consultation except for 5 minutes to simply inform her that my surgeon had agreed a revision, she has called twice, the second time i felt was geniunely to see how i was but the 1st time i was seething after the call, i explained to her over the phone about how they were looking and she replied ‘but did you not ask for the natural look claudine’ she really should have looked at the photos i had sent before she called me!
    I need to send my recent images in to be forwarded to my surgeon so i sent one and asked for an aknowledgement email before i sent the rest that was 3 weeks ago im still waiting, ive found the receptionist to be highly efficient i have to say.
    They have given me 3 follow up and all have been squeezed into full diaries so i do think they have given me surgeon contact when i have needed it it’s more a case of going in and being made to feel like there’s nothing actualy wrong and it’s just in my head or that im disgruntled with the appearance for no reason, im hoping to book in during December and hopefuly get a reason and a date for revision, it has dragged on long enough, like i said though i was happy to wait the 12 month because i thought that was better for my body but it’s deffo not been better for my head, thanks for your message xxx

    @littlec87
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